Coulter Hampton Foundation
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The following was taken from the Aplastic Anemia & MDS Foundation INSIDER- Spring 2009
 
Act now to support current legislation to secure federal dollars for service and research
 
H.R. 1230- Bone Marrow Failure Research and Treatment Act of 2009
On February 29, 2009, Rep. Doris O. Matsui (D-CA) introduced the legislation wich would  in crease the federal government's commitment to researching and treating acquired bone marrow failure diseases, including aplastic anemia, myelodysplastic syndromes and paroxysmal nocturnal hemoglubinuria. It also directs the deparment of health and human services to develop a comprehensive strategy the includes:
*a national bone marrow failure disease registry so that researchers con combine their data in one place, yielding more effective research designs and better results
*pilot studies through the Agency for Toxic Substances and Disease Registry to determine which environmental factors cause people to acquire bone marrow failure diseases
*minority focused programs to make information on treatment options and clinical trials available to minority communities, particularly Hispanic and Asian American communities
*Agency for Healthcare Research and Quality grants to help improve diagnostic practices and quality of care for patients with bone marrow failure diseases.
In total, the legislation authorizes $8 million annually for fiscal years 2009-2013. As many know, Congresswoman Matsui's husband, the late Congressman Bob Matsui had MDS.
 
On another note-
Dr. Hinh Ly, Emory University
Telomere Maintenance in Patients with Aplastic Anemia
 
Dy Ly's study examined various mutations in a protien called TIN2 (THIS IS WHAT HAPPENED TO COULTER) in patients with acquired aplastic anemia. Dr. Ly concluded that blood cells with these TIN2 mutations grew slower than cells collected from healthy individuals, which explains why cells from aplastic anemia patients turn over, or mature, more quickly. These results may offer a new cellular target for the development of new therapies against bone marrow failure diseases.
*We knew this from Dr. Alter and Dr. Savages work..but it's nice to know someone else is looking for answers!

SPONSORS FOR 2009! .....OUR HEROS!
KEN MCAFEE DENTISTRY
GEORGIA BANK AND TRUST
FAIRMOUNT KIWANIS
ROCK BRIDGE COMMUNITY CHURCH
FAIRMOUNT POULTRY
FAIRMOUNT ELEMENTARY SCHOOL
 
Please tell our sponsors you appreciate their support!

Please feel free to contact us at:
coultersfamily@comcast.net

Last updated on

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Tristan's Mom stopped by and said that they may get to move to the Ronald McDonald house soon...this is great news! March 2009

We have two new children!
Jennifer is 3 and is fighting leukemia...I'll add her picture ASAP! She's a cutie!
 
Matt Church is almost 18 and has been battling benign brain tumors and illness all his life. You can visit his web site here:
http://matt.dreamer.googlepages.com/home

click here to go to Matt's site directly...

Ride for Rachael
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I was so fortunate to be able to paint Rachaels face!

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Sarah is a spunky, talkative, and loving 9 year old. Her favorite things to do are play with her friends and her animals, talk on other peoples' cell phones, eat, and enjoy life. She was diagnosed with Stage IV Neuroblastoma in February of 2006. She was declared cancer-free in May of 2007, and was declared in relapse in December 2007. Every day with Sarah is an adventure and a blessing. Come along with us on our journey.www.caringbridge.org/ga/sarahw
Sarah got good news! Her recent scan shows her tumors are GONE! March-2009

Sarah Williams
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Neuroblastoma/ relapsed just after Christmas 2006

Blue Butterfly

Cindy Villatoro....is in first grade at Fairmount and doing well!

Ashton Silvers
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Non Hodgkins Lymphoma

Ashton hasn't been feeling well and will be going to St. Jude next week (Jan 14th..ish) to get a check up by the oncology docs.....they also have another addition to their family.....they have a lot going on right now...keep them in your thoughts.

Black Cat

Jennifer is 3, and battling leukemia....

Green Dinosaur

Tristan Jones had his bone marrow transplant on 2-10-09! His Dad reports he is doing well, playing bingo at the hospital and even made a few laps on his tricycle!

Rachael Reeves
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Our newest angel....

Welcome to the Coulter Hampton Foundation web site. Great news!  We are now officially a 501(c)3 organization !!! We hope this web site will be a  great way to organize Coulter Hampton Day,  keep members informed, and attract a broader audience by introducing ourselves to the community. We'll use this site to inform people about our organization, share ideas, and organize events and activities.

On March 12, 2005 an entire community gathered to help an eight year old boy.  His name is Coulter and he is my son.  It was the hope of our friends and family to sponser a special day to uplift Coulter and raise money for his fight against aplastic anemia/dyskerasosis congenita.  While Coulter was fighting for his life in a Cincinnati Hospital our town rallied together to show their support and love for our amazing son.  Unfortunately, Coulter wasn't able to conquer his disease and after fighting for 6 1/2 years, lost his battle.  The Coulter Hampton Foundation will continue in honor of him.  Every year during the weekend of March 12th we will have a special day to remember Coulter, raise awareness, and collect funds to help a local family and the organizations that helped us.
Please join us.  We live as long as we are remembered.

Be sure to get in touch to offer to help and join our mailing list.